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Anyone dealing with Dystonia?

Brain & Nervous System | Last Active: Feb 14, 2023 | Replies (44)

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@oakbourne

Yes, Cervical Dystonia. No, not related to spine injury. Mine is Genetic. I have not experienced pain all over my body. Yes, I have diarrhea from Microscopic Colitis, but that's a whole nother issue. My pain is the neck. We used to be called the "Pain in the Neck Ladies" in my support group. Yes, my mouth gets tight as a Tic along with pain. It sucks when you know more about this disease than your neurologist. I ask again, what are they teaching in medical school?

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Replies to "Yes, Cervical Dystonia. No, not related to spine injury. Mine is Genetic. I have not experienced..."

I have never heard of Light Chain Amyloidosis. Could you inform me about this because I've never heard of it. Plus what is Gelsolin? What is Cutis Laxa? "Loose Skin." You can teach me a lot. Thanks, Dorothy

@ Oakbourne My Dystonia hit this week. I am nearly voiceless at the moment. But I knew it was coming in my Gelsolin.