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Anyone dealing with Dystonia?

Brain & Nervous System | Last Active: Feb 14, 2023 | Replies (44)

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@12061948

Is this cervical dystonia that you have. Was it related to neck spine Injury that triggered it.
Do you have body pain all over your body. Muscle bone skin. Etc. Do you have digestive issues. Have you had your facial muscles tighten up etc.

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Replies to "Is this cervical dystonia that you have. Was it related to neck spine Injury that triggered..."

@12061948 Actually not particularly. Mine is related to my form of Light Chain Amyloidosis, probably Gelsolin or something close. And yes to you other questions, except the bone, muscles and skin do not tighten up. Cutis Laxa is what I get, "Loose Skin"

Yes, Cervical Dystonia. No, not related to spine injury. Mine is Genetic. I have not experienced pain all over my body. Yes, I have diarrhea from Microscopic Colitis, but that's a whole nother issue. My pain is the neck. We used to be called the "Pain in the Neck Ladies" in my support group. Yes, my mouth gets tight as a Tic along with pain. It sucks when you know more about this disease than your neurologist. I ask again, what are they teaching in medical school?