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Anyone dealing with Dystonia?

Brain & Nervous System | Last Active: Feb 14, 2023 | Replies (44)

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@oakbourne

Clonezepam is the only medication that helps me. Neurologists always want to give you ARTANE, but that makes me shaky and worse. I have an okay neurologist but she refuses to give me the proper amount of Clonezapam for severe pulling and pain. She is about to be fired and I'm looking for a compassionate caring neurologist. Every time I go this neurologist she learns a thing or two from me. I know more about Spasmodic Torticollis than she through my support groups and Symposiums I've attended plus living with this monster forever! I've informed her that Dystonia is a sensory disease. Yes, white light and white paper would send me through the roof and when I see a green metallic colored car, I feel like I'm experiencing a seizure. My disease originates in the Basil Ganglia and I'm overloaded with over the top neurotransmitters, (ACEYTOCOLENE) hence the hypertrophied muscles in my neck that look like ropes. I hate this disease. This disease is mostly GENETIC and only one family member has to transfer the DYT1 gene to their offspring.

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Replies to "Clonezepam is the only medication that helps me. Neurologists always want to give you ARTANE, but..."

Is this cervical dystonia that you have. Was it related to neck spine Injury that triggered it.
Do you have body pain all over your body. Muscle bone skin. Etc. Do you have digestive issues. Have you had your facial muscles tighten up etc.

Wow! Green cars. I understand. I could never look at anything red and green together without spinning. Noise makes it impossible to attend a sporting event. I like natural light.

Does anybody have the sudden need to sleep overcome them?