@mdmo I am on Dilaudid 2 mg every 4 hours, plus valium for Adhesive Arachnoiditis. I have been on here before & guess u can see my entire whining situation. This doesn't help my pain too much ( but I've gone thru hell, just to get this. I have taken Dr Tennant's papers to doctors, none of them are interested. Am a retired RN, spine fused thru C3 thru sacrum. Pain clinics are a joke, have been to several. The one i have now seems to be a pill mill for really messed up people, like myself. I literally get 3 minutes with my pain Nurse. So do all the the others, as we have talked about limited help, outside after appointments. Arachnoiditis has ruined the last 25 yrs, plus of my life. I can't sit up or type, due to extreme pain in my neck & shoulders. Most of my pain is in my legs, feet toes. I have no lower back pain, probably due to my fusion.. Does pain pump help this type of pain? I had a trial with Dilaudid, but i get such extreme constipation, i didn't get the pump. besides my doctor doesn't want to put it in my neck... I have another stimulator in right side of spine (DRG), & hardware entire spine. So i am not exactly a great candidate. Plus my UTI's are drug resistant, due to suprapubic catheter. My name is lauren Seavertson. Sorry, can't sit up. Need to go to the hospital tomorrow AM, another UTI... i am really scared, as my kidneys aren't great & running out of antibiotics to take. Only good thing, is that i live in AZ & on ATLCS AZ, long term care & i am now so poor, i don't have to pay anything, for my lousy care. Can't sit up now, please write, if interested
@laurenseavertson789 I am so very sorry for you and agree with you. I can only say that my sufurzyme has helped prevent tge advancement for 20 years but now for last almost year I have been forced to pull myself up 3 flights of steep stairs a couple times a day to care for my son suffering from advanced stsge cancer and AA has gotten terrible with every part of my body on severe pain. I am trying to find a mayo doctor who would work with dr tennents protocol. The only part of his protocol I can use is estrogen estradiol and a supplement for inflammation.