@jagzandsherz this is a difficult time but you are not alone. Please know that there are many current treatments and that medical treatments in this area are advancing at a rapid rate. I was diagnosed with NET’s at around 61 and am now 65 and the most comforting comment I was told by my specialist is that ‘we can manage this and it’s more than likely you will pass away from old age rather than NETS’. Of course everyone has their own journey and circumstances but keep this in mind. Your husband’s NET specialist team will be crucial to managing the stabilisation of his NETs & quality of life so your question is incredibly important and shows you are already on the ball.