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Anyone taking Tagrisso for Lung Cancer?
Lung Cancer | Last Active: 4 days ago | Replies (171)Comment receiving replies
I have been on Tagrisso for 19 months and just discovered this online community. Lung cancer was discovered when I had a long bout of Covid and asked my doctor for a chest x-ray. Surgery and chemo followed, and then my oncologist put me on Tagrisso. So far, so good! I am so relieved to read the comments about the same side effects that I've been experiencing. Splitting fingernails, general tiredness and lack of motivation, and leg cramps. The worst is that I've lately developed restless leg syndrome, which forces me to get up from bed and walk around the house for at least ten minutes before it eases enough to go back to sleep... until the next bout. I don't know if this is a result of Tagrisso; has anyone else experienced this? My PCP prescribed gabapentin for restless legs and I've been taking that for about 5 nights now. It does seem to help. I feel guilty complaining about these minor but annoying side effects when so many of you are dealing with much worse, but there it is. Thank you so much for your comments and encouragement.
Replies to "I have been on Tagrisso for 19 months and just discovered this online community. Lung cancer..."
Tagrisso causes cramps in my legs, feet and hands. Very painful. I keep a bottle of Magnesium oil with me at all times. Spray it on the cramp, rub it in, and the cramp is generally gone in a few seconds. Wash your hands good after using, the oil can be irritating if you touch your eyes. I also keep a bar of soap with lavender oil in my bed. I know it sounds crazy but there are many articles on the internet on users of this method. I no longer get cramps at night. For the fingernails, have your Zinc checked. I also take Biotin which helps with nails and hair.
Hello @kugan ,
Welcome to Mayo, I’ve found so many kind, knowledgeable and helpful people here.
So sorry about your lung cancer diagnosis, surgery and chemo.
Restless leg doesn’t sound fun, such interrupted sleep !
As mamajite said, don’t worry about sharing what you are going through. I’m glad the gabapentin seems to be helping.
🤗 Daisy
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@kugan welcome to Mayo Connect - we're glad you found us! it's good to hear you're doing well after surgery and chemo, and tolerating Tagrisso. I haven't had restless leg syndrome, but I hope the gabapentin will help alleviate it for you. don't feel guilty for sharing your experiences - cancer and treatment are hard.