← Return to PMR - What do you wish you had known . . .

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Profile picture for wendybfrompgbc @wendybfrompgbc

here I go again. finally managed to get an appointment with urgent care after quitting Prednisone about 5 weeks ago .After being on Prednisone for over 5 years my final taper was from 3mg to0. I won't get into the damage Prednisone has done.I am in tremendous pain and am on fire in my muscles. the doctor said that I wasn't' in adrenal insufficiency because my blood pressure was good both standing sitting,and my c reactive protein was only slightly elevated I ask here if there something I could take for the burning in my muscles and she said not really. I guess it means that I will have to put up with the pain

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Replies to "here I go again. finally managed to get an appointment with urgent care after quitting Prednisone..."

Thank-you for the hug

@wendybfrompgbc Please have your CRP and Sed Rate tested again in 3 weeks. Personally it sounds like you are not in remission and b going completely off the prednisone is contributing to the return of PRM - aka a Flare.
If your PMR did not go into remission while on the steroids, then you still need something to help manage your inflammation that PMR is causing. This is where steroid sparing drugs come into play. Talk with our doctor about getting on a steroid sparing drug to support you going off steroids.