Hi Teresa
Yes, Lung Nets symptoms can differ from GI symptoms though it seems that fatigue always overlaps.
Sometimes it is difficult to distinguish between the structural symptoms of the tumor itself and the Carcinoid syndrome. They overlap. However, from the Carcinoid Syndrome itself there is the usual wheezing, coughing, shortness of breath, mucus, flushing and overproduction of liquid in the eyes that seems like counter intuitively to present as dry eyes (which is treated with the very expensive and worthwhile) prescription Miebo). I am so fortunate that I do not have Cushing Syndrome which is the release of ACTH from the tumor.
Twenty six months on Lanreotide and six months of Ochtreatide rescue shots.
Another way of handling the Lung and other area's Carcinoid Syndrome (mainly more flushing) is to self declare Cancer free days.. Where I give myself and others a deliberate break from dealing with Doctors, insurance, and discussions with friends and have a run-away-day even if it is to a local park with a companion, river, book, and campfire: Rejuvenates. And you? Any strategies in dealing with Carcinoid syndrome or NETs in general? Always interesting and helpful.