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Profile picture for espelandmt2 @espelandmt2

I was on Everolimus for 12 months with very inconsistent results and lots of side effects. I started at 2.5 mg and finished at 10 mg. I had scans every 3 months and tumors progression continued throughout, but not consistently. Tumors that weren’t growing began growing on one scan but not on the next and vice versa. I had many the side effects. Mouth sores, acne, fatigue, joint pain. They would start to diminish after several months, but each time the dosage was increased they came back. I also lost 26 lbs. while eating literally anything I wanted, the only benefit I really got. However, I have heard of people that do really well on it with minimal side effects for years. I just wasn’t one of those. Definitely use the mouth wash and avoid salt and spicy foods if you get the mouth sores. Nap frequently and take Ibuprofen for the joint pain. Good luck!

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Replies to "I was on Everolimus for 12 months with very inconsistent results and lots of side effects...."

@espelandmt2 Now that you are not taking Everolimus what treatment are you currently using?