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How do you manage symptoms of carcinoid syndrome? Tips please.

Neuroendocrine Tumors (NETs) | Last Active: Jul 26 7:42pm | Replies (23)
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Profile picture for Colleen Young, Connect Director @colleenyoung

@richard62castroville, welcome. I'm tagging other members in this discussion like @billbo @gtassithomas @maeve115 @fraaseo, who have experienced carcinoid syndrome symptoms.

Richard, what symptoms are you experiencing?

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Replies to "@richard62castroville, welcome. I'm tagging other members in this discussion like @billbo @gtassithomas @maeve115 @fraaseo, who have..."
richard62castroville | @richard62castroville | Jul 26 6:18pm

@colleenyoung
I was diagnosed with end stage 4 spread to my liver lymph nodes and lining of the abdomen . Main tumor in the small intestine.
Treatment is Lanreotide
Symptoms are fatigue , abdominal pain , muscle weakness. Flushing from the Carcinoid syndrome . Pain and discomfort from the infusion site .

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