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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 19 hours ago | Replies (6891)

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Profile picture for John, Volunteer Mentor @johnbishop

Hello Lou Ellen @louellenc, Welcome to Connect. It sounds like you've had all of the normal tests, including a skin punch biopsy but they weren't able to find a diagnosis. I'm sure you are not alone and others with similar symptoms have struggled to get a diagnosis and treatment. You might find this related discussion helpful:
-- May have undiagnosed autoimmune disease:
https://connect.mayoclinic.org/discussion/may-have-undiagnosed-auto-immune-disease/
You mentioned your neurologist couldn't find anything and thinks it's anxiety. Have you thought about getting a second opinion from a specialist like a neuromuscular neurologist?

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Replies to "Hello Lou Ellen @louellenc, Welcome to Connect. It sounds like you've had all of the normal..."

Thank you John. I see the neurologist Thursday and will ask for a referral
to a neuromuscular neurologist.

@johnbishop Well, I have a bit of an answer. It’s Small Fiber Neuropathy. Still waiting to see if we can find a cause and treat that. Meanwhile I’m hoping to find resources here for nutrition and exercise and anything else I can control to help ease the fatigue and pain.