Hi everyone thought I would check in again after my numerouse Dr appointments and give you an update. I went to get a second opinion at the Mayo Clinic at Rochester Dr Moua then saw my pulminologist here and also saw my infectious disease Dr. here. They are all on the same page that they would not start treatment yet for mycobacterium abcessus. My most current Ct scan was better that the last one that I had a couple months prior. They said my Ct scan looks pretty good.
Saw my pulminologist here and he wants to do a bronchialscope next week on me. He said that would help clean out the airways of trapped mucus and mycobacterium and that he has had patients do well getting a few scopes a year. Not that scopes are a cure but could be a big benefit to help your own lungs clear out bacteria. I have had scopes in the past not for mycobacterium and noticed a big improvement in breathing afterwards. I have had bad asthma since childhood so that is what started the spiral downwards. Saw my pulminologist the first time about 9 years ago with pneumonia that didn't respond to antibiotic. Was diagnosed then with bronchectasis.
I do all the usual things saline nebs aerobeka and also The Vest airway clearance twice a day for half hour each time.
Do some of you have the special shower filter for showering and how much do they run?
I'm not to big on baths knees aren't the best.
Thanks!!!
Shari