@rhb18 We appreciate your comments as Ron goes for his 2nd PRRT treatment on Augustt 3. So far, the main side effect has been fatigue. We're praying that will continue after the 2nd treatment. We are wondering if you had a PET scan at any point to see if it is working.

@rhb18 I really appreciate you sharing about your experience and your recommendation for PRRT. When will you be having follow-up scans or other tests?

@rhb18: It is with great pleasure I read your post revealing that any reservations toward PRRT Lutathera NET treatment are in your “rearview- mirror”. Soon you will get results of your MRI w/Evoist contrast! I can recall how anxious I was.
I am now 2+ yrs post PRRT and just received results of my “every 3mo MRI/Blood Lab tests”. Every scan has shown the PRRT treatment sill working in my body, shrinking tumor cells & maintaining “Stability”. It was just what my body needed to give me more stable time with my family.
The “fatigue” is much better, but still with me. Some days I can accomplish everything I wanted to; while others fatigue rules. I incline to think that this effect will be with me ‘til the end. I adjust my life and accept this down-time as what my body needs.
I wish you so much happiness in finishing your PRRT infusions. My wish for you is tiny tumors remain and some no longer visable; but also know that “Tumor Stability” is a huge WIN and offers you good quality of life. I am grateful for your courage to improve your days. Kudos!!!
Bette dbamos2945