I was diagnosed with GAC in 2020. My inflammation numbers were over 300. I started Actemra injections in January of that year. I qualified for medicine assistance and started giving myself injections. I had read normally these injections are tapered off after two years. I asked about stopping the injections. At this point my inflammation number was 2 and had been for quite some time. I read that normal for GCA is 0 to 20. My doctor’s reply was I should stay on it because of my age. I started the injections when I was 80 and now I am 87. In April of this year I received a letter from my insurance company stating I was being denied help with my medicine. It stated my doctor didn’t follow a list of procedures for diagnosing GCA. Therefore, I didn’t have GCA and didn’t need the medicine. I am now experiencing problems with my fingers tingling and sometimes feeling numb. I read that this a sign that GCA is coming back. Has anyone experienced anything like this happening? I filed for a reconsideration of their decision and have not heard anything so far. I have made numerous calls and rarely receive a call back.