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Refusing folfox treatment after chemoradiation
Colorectal Cancer | Last Active: 15 hours ago | Replies (45)Comment receiving replies
Thank you for sharing.
I am just debating, I wonder if I really need it. I had chemo radiation treatment for 5 weeks. I am on a break and the next step is Folfox if I decide to go for it. The chemo is supposed to kill the cancer cell who may have escaped yet it is attacking the good cells and weakening the immune system.
I have been so amazingly lucky in my life to never have been to doctors except when I was a kid. My body is my temple and has been very good to me up to my 64th year.
I am curious about other people experiences. It would be very valuable to me to hear about people stories. Thank you so much. Hope you will be fine.
Replies to "Thank you for sharing. I am just debating, I wonder if I really need it. I..."
@girafe
I had a colon resection in January of 2025.
Chose to do periodic bloodwork and ct scans.
For me, I could not rationalize doing chemo in a way that sounded like“prevention” when all scans and bloodwork were good and have continued to be.
We all have to be comfortable with our own decisions and I know that.
Don’t ever stop thinking for yourself.
I know too many people that have suffered horribly with treatments.
I love and appreciate every single day!
@girafe It is wonderful that your life has been amazingly lucky. Are you really willing to take a chance and not do folfox? I was diagnosed stage 3 rectal cancer. After chemo radiation it looked like my 3 cm tumor was gone. The folfox continues the fight. Yes, there are side effects but please do what you can to make sure your cancer is gone.
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@girafe I finished 6 wks of radiation and Xeludo on June 16th. I had surgery to remove a small part of a mass that was left over from a colonoscopy that couldn’t be removed. I was told most people don’t have surgery first before starting treatment so it was difficult in the end. I’m still recovering but am much better now. Folfox was suggested as a 4 month follow up to the treatment I had . I really don’t want it. I see my oncologist on Tuesday to review the CT scan and MRI and I’m hoping they’re clear.