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@jenniferhunter
Not sure if you are still there. If so, happy to update…it’s been two years now…I underwent open spine surgery at Mayo with a ligation of the fistula found at T10-T11. I continue recovery, which is a slow process. Balance is not good, but somewhat improved. Have fallen number of times!
Mayo continues to monitor my condition with neurology.
I have fallen as recently as March of 2026, and my local spine surgeon tells me I have nerve compression mostly in the lumbar…also in cervical- recommended a fusion L2-L5 with instrument down to L5-S1 previously fused.
Mayo neurosurgeon doesn’t seem to agree that a surgical solution will help with the leg weakness…recovery from a fusion will likely be nuanced by the effects of the previous AVFistula ligation and scar tissue from previous surgical procedures.
So, the beat goes on…no lumbar surgery for now…and walking and standing is difficult at best! I walk with a can, trekking poles and/or a high handled walker which I purchased while at Mayo years ago.

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Replies to "@jenniferhunter Not sure if you are still there. If so, happy to update…it’s been two years..."

@burrkay It is so good to hear from you. I am not on here as much due to personal issues and I have been fostering a litter of kittens. They take a lot of time and one needs medication frequently. I am glad you are taking your time with healing and not rushing back to surgery. Scar tissue can cause issues after surgery. Have you heard of myofascial release therapy to stretch out the surgical scars including internal fascial scars? I have done a lot of this and it helped me a lot. There is a provider search at mfrtherapists.com and we have a good discussion on it that you can find in a search. In my own experience, stretching out the fascia and scar tissue releases restrictions and lets the tissue move better and improves circulation within tissues. I am glad you have your Mayo surgeon as a resource. I recently experienced leg weakness because my pelvic alignment was off. I was in PT and the therapist had pulled on my leg and I think that my femur wasn’t seated correctly in my hip joint. From there, it got weak enough that I couldn’t lift my leg much and it was painful and weak. I did a lot of stretching of everything connected to the legs and pelvis and when the muscles released the tension, my femur clunked back in where it belongs. Several weeks later with continued stretching, I am back to normal. Are you in rehab with a physical therapist?