Do you still have your gallbladder? Pet scans involve isotopes. There are many different isotopes used in PET scans investigating many types of cancer. The two common isotopes for NETs are Gallium and Copper. I wonder what isotope was used for your PET scan?

Getting a Neuroendocrine cancer diagnosis can be tough. Its often an illusive cancer that is not detected until symptoms force a search for answers which can take a while. I had intermittent small bowel problems for years before correct diagnosis.

Ask your general surgeon for biopsy results. Your insurance company will want NETs under a microscope before they are 100% sure, you can bet on that! 🙂 My first surgeon said "My first, second, and third guess is Non-Hodgkins Lymphoma". He was wrong.