Connect
← Return to How do you manage symptoms of carcinoid syndrome? Tips please.
Discussion
How do you manage symptoms of carcinoid syndrome? Tips please.
Neuroendocrine Tumors (NETs) | Last Active: Jul 26 7:42pm | Replies (23)Comment receiving replies
@maeve115 Those symptoms can be a challenge. What helps manage them can be a bit of try it and see if it works unfortunately. What works for one person might not work for another. What have you tried so far? Where is your primary NET? Has it spread anywhere?
Replies to "@maeve115 Those symptoms can be a challenge. What helps manage them can be a bit of..."
Connect
@tomrennie
Primary unknown. Suspected to be ilium.
In addition to what I wrote I also include antihistamines, motility meds, working with a nutritionist and Grounding techniques.. And sharing with other Netters our successes with our differing symptoms. I found it helpful here that others use antihistamines too.