@dianedenise
In 1990, my 74 year old father woke up one morning and could not see. He was taken to the hospital where they suspected Temporal Arteritis and put him on high dose steroids. His vision returned. A biopsy was negative for TA. For five years we visited doctors from Boston to New York looking for answers to flare ups. I told doctors he had VIM; Vascular Inflammation, Migratory. I also called it Whack-a-Mole inflammation but that didn't sound as professional. One night while I sat with him in the hospital a doctor came in and sat with me. He said, You know, we may never know what's wrong with your dad, but we know what's killing him." I said, "Steroids?" He said yes and suggested we stop searching and focus on keeping him comfortable. He lived, comfortably, another five years without a diagnosis.
In November, 2020, I went to the hospital (my PCP wasn't seeing patients) with a 2 week headache. The doctor said my sed rate was very high and she suspected Giant Cell Arteritis. I told her I'd never heard of it and she said they used to call it Temporal Arteritis. My biopsy was positive.
I never had covid or mono. I get monthly tocilizumab infusions and try to keep prednisone use to a minimum as I suspect they left me vulnerable to melanoma and cataracts.
I give thanks for my blessings. It could be worse.