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DiscussionPancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 4 days ago | Replies (2368)Comment receiving replies
Replies to "@jopier I am being treated at Roper in Charleston SC. My chemo meds are Eloxitan, Irinotecan,,..."
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@jopier That's can be a rough regimen. Is there a time table for how long you will be on it, before your follow up tests/scans? I can relate to the large family. I have one too. Knowing who to share what with and when is a difficult balance especially with your mom. I shared it first with my dad who was 86 at the time and my siblings. My mom passed from cancer about 26 years ago. I too had genetic testing that showed it wasn't genetic. So, I wanted to not only inform them of my diagnosis, but I also wanted to let them know that it wasn't genetic. My relatives started asking questions once I missed a family gathering or two. I wanted to take the heat off of my siblings, so I started to share things with more family. But, I needed that extra time to better process things, so I could be prepared to answer their questions. Every family is different. I wish you the best of luck with managing it. When it comes to where to go, I suggest looking at the National Cancer Institute's (NCI) Designated Cancer Centers. Here is a link for more information: https://www.cancer.gov/research/infrastructure/cancer-centers You want to go somewhere that has experience with a high volume of pancreatic cancer patients. That experience can make a difference. Maybe another member will share their thoughts on the subject?