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← Return to Acterma infusions for GCA
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I’m not tapering off but have a question. I’ve been on Actrema infusions for 3 months for GCA. I’ve noticed symptoms returning after 3 weeks. I asked rheumatologist if normal and was told no. Have others had this experience?
Replies to "I’m not tapering off but have a question. I’ve been on Actrema infusions for 3 months..."
@gailcha I have RA and I have been on actemra for a few years. My rheumatologist told me it is meant to be used in combination with another drug, like arava, plaquenil, etc. and that it takes about 5 months for it to work fully. I started out taking it with arava and after about 5 months I could really tell a difference. I am prone to lung infections and after 3 years or so I developed a mass on my lung which the doctors think was caused by the arava. The mass turned out to be just necrotic tissue but then my rheumatologist was afraid to put me back on arava so he gave me actemra with methotrexate. Even after several months it has not been very effective.
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Are you still on steroids ?