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DiscussionDiagnosed with aggressive NET. Happy to see this group!
Neuroendocrine Tumors (NETs) | Last Active: Oct 17, 2017 | Replies (14)Comment receiving replies
Replies to "Hello Justin @somefan I was thinking about you and wondering how you are doing. Are you..."
Hello Justin @somefan
I appreciate your checking in with us and letting us know how you are doing. I'm sorry to hear about the increased neuropathy and vision symptoms. I am glad to hear the you have an appointment with an opthamologist. I suppose you already know this, but you can increase the size of the words on your computer screen by pressing the Shift and the + (plus sign).
Does your oncologist say that the vision problem is related to the infusions?
Teresa
Thanks for the response and I am embarrassed by the delay. I need to remember to check this site daily!
The last infusions hit me pretty hard admittedly which was probably part of the reason. My neuropothy has definitely hit harder and I have some pretty significant blurring in my left eye that hasn't yet gone away. I am going to schedule an ophthalmologist appointment on Monday per my oncologist's suggestion. I have to wink to effectively read text on my computer and I feel like I'm looking at the world through a sheet of plastic with a slight distortion.....Very annoying!
This all kicked in on the first infusion day, which is the day I get the carbopatin so I'm going to blame it on that. I felt pretty terrible after that infusion, but not so different on day 2 and 3 when I just got the etoposide.