1. < Gynecologic Cancers

Ovarian Cancer Stage 1 borderline progressed to high grade Stage 4

Posted by Laurie Ann @laurieann789, Aug 3, 2017

Hello!
My name is Laurie and I was diagnosed with Borderline Ovarian Cancer 1-2016. I was monitored with CA 125 and abd/pelvic CAT scans. In March I was diagnosed with Stage 4 metastatic disease to the lungs. I have no evidence of the cancer in my abdomen or pelvis. I was hospitalized with "pneumonia" but it was the lymphangetic mets. My CA125 went from 37 in December to 948 in March. Is there anyone out there who has the same disease process? Thank you

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 28, 2018
In reply to @seansfather "I had to log in as sean's father as my husband and I share an email..." + (show)
@seansfather

I had to log in as sean's father as my husband and I share an email account. However I have a different disease, ovarian cancer. I read all the posts and wonder if there are any current connect users for 2018. Really would like to share as it has been over 3 years since I finished chemo and almost a year since I completed a clinical trial at Mayo Clinic Rochester.

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Welcome, Seansfather. That's a bit funny writing to the name "seansfather" when talking about ovarian cancer. While we wait for Pat and LaurieAnn to return to this discussion, I'm hoping you'll tell us a bit more about you.

What was the clinical trial that you did at Mayo? How are you doing now?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 28, 2018
In reply to @seansfather "I had to log in as sean's father as my husband and I share an email..." + (show)
@seansfather

I had to log in as sean's father as my husband and I share an email account. However I have a different disease, ovarian cancer. I read all the posts and wonder if there are any current connect users for 2018. Really would like to share as it has been over 3 years since I finished chemo and almost a year since I completed a clinical trial at Mayo Clinic Rochester.

Jump to this post

I also want to invite @caf132 @pauldale4 @elenab and @katethegreat into this discussion about ovarian cancer.

REPLY
katethegreat | @katethegreat | Apr 1, 2018
In reply to @JustinMcClanahan "Hello @laurieann789, and welcome to Connect. I would like to invite @joannedb, @mfell @gill @jfc4 @libbysmom,..." + (show)
@JustinMcClanahan

Hello @laurieann789, and welcome to Connect.

I would like to invite @joannedb, @mfell @gill @jfc4 @libbysmom, @rena42, @katethegreat and @mohavegal to this discussion as they have all discussed ovarian cancer in the past.

Laurie, are you currently undergoing any treatments for you cancer or diagnoses? How are you feeling?

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Hello, glad to be invited back. I was diagnosed in July 2015 with Stage 111C ovarian cancer. I had a radical hysterectomy and subsequently was given six, 6 hr. treatments of both Carboplatin and Taxol. I developed neuropathy in both my hands and feet. My feet were the worst. Was quite worried about my hands as I am a stitcher. However, after a period of time my hands improved enough that I could return to stitching as I could once again feel the needle. My feet seem to be getting somewhat better. I was never offered Avastin and was a tad upset about that. However, I have subsequently been put on Tamoxil. Will have an appointment on April 17th and see if it is helping. I was fine until October 2017 when my CA125 started rising again to 148 in December. Have not been offered anything with respect to clinical trials would be most interested in either Canada or the US. The type of ovarian cancer I have is Serrous (sp??). Just curious, what is Eliquis and what is PE. How can you find out about clinical trials for specific types of ovarian cancer and your type in particular. Thanking all in advance for any help and information.

REPLY
1 reply
susu2 | @susu2 | Sep 17, 2018
In reply to @katethegreat "Hello, glad to be invited back. I was diagnosed in July 2015 with Stage 111C ovarian..." + (show)
@katethegreat

Hello, glad to be invited back. I was diagnosed in July 2015 with Stage 111C ovarian cancer. I had a radical hysterectomy and subsequently was given six, 6 hr. treatments of both Carboplatin and Taxol. I developed neuropathy in both my hands and feet. My feet were the worst. Was quite worried about my hands as I am a stitcher. However, after a period of time my hands improved enough that I could return to stitching as I could once again feel the needle. My feet seem to be getting somewhat better. I was never offered Avastin and was a tad upset about that. However, I have subsequently been put on Tamoxil. Will have an appointment on April 17th and see if it is helping. I was fine until October 2017 when my CA125 started rising again to 148 in December. Have not been offered anything with respect to clinical trials would be most interested in either Canada or the US. The type of ovarian cancer I have is Serrous (sp??). Just curious, what is Eliquis and what is PE. How can you find out about clinical trials for specific types of ovarian cancer and your type in particular. Thanking all in advance for any help and information.

Jump to this post

Kate the great: I just posted on another part of this thread. Have you had any recurrence?

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