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Is there a list of the top NET specialists?
Neuroendocrine Tumors (NETs) | Last Active: Jul 26 9:25pm | Replies (13)Comment receiving replies
Thank you for your response. My husband has recently been diagnosed as having a NET. We are in the beginning stages of discovery with scans happening next week.
Replies to "@hopeful33250 Thank you for your response. My husband has recently been diagnosed as having a NET...."
@jagzandsherz this is a difficult time but you are not alone. Please know that there are many current treatments and that medical treatments in this area are advancing at a rapid rate. I was diagnosed with NET’s at around 61 and am now 65 and the most comforting comment I was told by my specialist is that ‘we can manage this and it’s more than likely you will pass away from old age rather than NETS’. Of course everyone has their own journey and circumstances but keep this in mind. Your husband’s NET specialist team will be crucial to managing the stabilisation of his NETs & quality of life so your question is incredibly important and shows you are already on the ball.
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@jagzandsherz
I'm glad that you found Mayo Connect. This is a good place to learn from the experience of others. For many of us with NETs, our diagnosis came about as an incidental finding on a scan or endoscopy when our medical team was looking for something else.
Was this your husband's situation, or was he having symptoms that led his doctor to look for NETs?