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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @jagzandsherz and welcome to Mayo Clinic Connect. You are asking an important question. For the best outcome of NETs treatment it is important find a specialist who is well-versed in NETs. This is a rare form of cancer and is best treated with a professional who has vast experience.

There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/

Will you share a little about your journey with NETs? Are you seeking a second opinion for yourself or a family member?

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Replies to "Hello @jagzandsherz and welcome to Mayo Clinic Connect. You are asking an important question. For the..."

@hopeful33250

Thank you for your response. My husband has recently been diagnosed as having a NET. We are in the beginning stages of discovery with scans happening next week.