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Profile picture for crnelson @crnelson

@positivethinking

I was diagnosed with CIDP 3 years ago. I have had the IGIV infusion for 1-1/2 years and didn't see much improvement. Then I went on 12 weeks of corticoid steroids. Nothing. I am then went to Rituximab infusions every 6 months. I see improvement right after the infusion, but only for about 3 months. Currently I am waiting to get into a Clinical Trial. I take 200mg of Gabapentin every night to alleviate some of the pain. I don't like being foggy headed, but I have to have some relief.

I went to the Mayo Clinic in Rochester, MN and was confirmed as CIDP.

Good luck to you. I am always around to talk.

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Replies to "@positivethinking I was diagnosed with CIDP 3 years ago. I have had the IGIV infusion for..."

@crnelson
Thank you for the info. I don’t hold out much hope for relief. Hard to find a good neurologist locally