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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Aug 6 7:33am | Replies (914)Comment receiving replies
Replies to "@loribmt Lori, My transplant has pretty well followed your timeline. My first signs that engraftment was..."
@lorieliebrock
Excellent. I got to be in the hospital so i loved the daily updates on the board. The nurses and drs visiting daily were just as excited for the engraftment to start. I had much fatigue the first couple weeks, but then i did my best to walk the floor around and around. I could only dream of Lori's experience in staying offsite. Not having to drag my "IV pole" everywhere i went.
Eating is tough. I found foods I could eat the first few weeks and kept eating them. The "room service" at COH had delicious food so weeks 3-4 i had some tasty eats.
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@lorieliebrock. Good morning! This is a really encouraging update! Having engrafted, you are now on the road to recovery. It can’t be rushed…the proverbial ‘this is a marathon not a race’ holds true. So hang in there. You’ll start to feel slow but steady gains in strength and stamina.
Walking does wonders for recovery, just don’t over do it. ‘Listen to your body’ was drilled into me over and over! I’m not one to sit idle during the day so that was a challenge. But the body does tell us what to do. If you feel you need to rest, then there are guilt free naps any time of the day! ☺️
Thanks for the update! Keep ‘em coming! Air hugs!