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@ess77, thank you for sharing your journey. My doctor and I have come to an understanding with a 2.5 mg taper every 2 to 3 weeks until I get down to 10 mg. Right now I am at 12.5 mg. I will let her know when I get about 3 days before the next 2 week taper if I feel I need another week. She tried very hard to get me to quick taper again but after trying it once I refused to do it again and I'm holding my ground. I've been on the prednisone since May, not very long as others have done this journey for years. Light exercise and walking help me. The humidity and also dampness knock me down. Its a new ride every day. I keep my seat belt and helmet close by these days, lol! I have a good thought every day for all of us that are suffering . Blessings to everyone
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@carolneedham
I had PMR 6 years ago and went to the Rheumatology department at UAB. They had me taper off of prednisone by 1 mg per Month. Taper slowly so your body can adjust and start working on its own again. After 12 months I was at 0 mg prednisone and I have had no PMR symptoms since then.
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@carolneedham, Mike @dadcue, and all... This sounds wonderful for you. You sounds pleased and like it meets your wishes. That's a good thing! That often for me was the hardest part of this silly mess... getting enough legitimate information from my own 'research', from legitimate sources, and fro!, m foks like most here who are walking the same or have been walking the same road as you. I learned to respect several folks in particular who appeared to understand where I was coming from and perhaps experienced much the same as I... who gave me good guidance.
Then, I took a big breath, ha!, pulled up my bigger girl undies thanks to Prednisone! Ha!
And had clear chats with my doctors. When they realized I was becoming better informed and truly intended to be a partner with them, and expected the respect deserved, the relationship became a real partnership and we made progress.
There were several failures along the way. So, I did some praying and found another route, another avenue to get the help needed. My prayers were answered personally when I became a Mayo Jacksonville patient, frequent flyer for sure. They have, in most part, been on target, right there looking me in the eye dealing with my needs, treating me with care and respect.
For the most part. Not 100%, but my word! What a change in my life they made and are making! I am still living, seeing colors again, off so many horrid chemicals doing weird things to my body. Now, getting good chemicals, at least so far as we know now... and helping reduce some of the harm. Hopefully, giving me many more days of color and music.
Wishing you the same, building good relationships with your medical team...
Blessings, Elizabeth