Hello @techi, I'm sorry they are putting you through this mess. You might want to check with your local government to see if there is a way to resolve the issue. Depending on where you live, I would do a search on https://www.google.com/ for "state board of health appeals procedures" to see if there is a state government means of resolving your problem with the insurance company and the doctors. It might be a lot less expensive for you than having to hire an attorney.

John

Lisa (@techi), I found a website that may help walk you through the process with your insurance company and doctor.

Patient Advocate Foundation - http://www.patientadvocate.org/

John

ahhhh! you are one of the informed ones. thank you for your input.

yes, this happens many, many times. it seems as though that DO NOT CARE. we the patients are in a losing place. wish there was something we can do.

i could be wrong but for what i can see, the attorneys work together with the doctors. perhaps the doctors have contracts with the attorneys , not all doctors mind you but quite a high percentage.of them. paranoia or reality?

John l looked into the patient advocate and l am waiting for a call back today she was out of town. I am waiting to see what she can help me with. I know you have been reading the comments and l was so happy to find another article online about autoimmune encephalitis and when l go back to the mayo clinic l will show the neurologist because l am suppose to have the PET and that can't tell you if you have autoimmune encephalitis and l was diagnosed with that in 2014 and it doesn't go away unless you have been treated for it. So they said if all your test come back normal then a doctor who is trained will look further into it if you have the symptoms but if a neurologist is not trained they will say its mental. And their is also another PET that should be done if the regular one comes back normal. And they are looking to see if l have fmd but l don't they are just going by family history. Look at the lancet neurology very interesting article.

Thanks Lisa (@techi). The Lancet Neurology is really an interesting journal that provides a lot of the latest information available. Not sure if this was the article but it's in PDF format so you can print it and show your doctor/neurologist.
https://aealliance.org/app/uploads/precis-of-lancet-neurology-autoimmune-encephalitis-paper-corregido-por-dalmau2_editora_5_63_1.pdf

I'm hoping you can get some results with the patient advocate. Can you let us know if she is able to help you?

John

Thanks John and l sure will let you know what they say.