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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: Aug 13 8:45am | Replies (163)Comment receiving replies
@dadcue - Thanks for this. I am only 6 weeks into my 'official' journey with PMR, but I know I have had it for at least six months prior to acute flare and diagnosis. Started on Prednisone and having severe reactions and side effects to it. My rheumatologist is already suggesting Actemra , due to reactions to Pred. What do you think, given your experience? I also have extensive Erosive Osteoarthritis throughout my body!
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@sbgigi
The Erosive Osteoarthritis is aggressive. The damage is permanent and likely will contribute to your pain. I have arthritic damage too but it was mostly caused by chronic inflammatory arthritis and not all of it was caused by "wear and tear" osteoarthritis.
I took Prednisone for a very long time for PMR,. I was still able to taper off Prednisone but only after Actemra was started. Your results may vary but hopefully it will enable to taper off prednisone too. I personally have minimal (hardly any) side effects from Actemra. However there are potential side effects.