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Vulvar Cancer: Anyone else?

Gynecologic Cancers | Last Active: 9 hours ago | Replies (253)

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@leratom
Hi. Perhaps the doctors think you are in early stage cancer. They need to determine the composition of the lesion/ mass and determine staging before treatment. If you feel it’s not going well with those doctors please seek a second opinion if you are able to do this. I was lucky my mass was in Stage 1B so no chemo or radiation needed, just surgery. There are websites at Cleveland Clinic, Mayo Clinic, Northwestern and Kettering Sloan which provide more info.

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Replies to "@leratom Hi. Perhaps the doctors think you are in early stage cancer. They need to determine..."

@teedee66 I was diagnosed early April. Had surgery in June. Right radical vulvectomy, left wide local excision of the vulva, and partial bilateral vaginectomy. Many biopsies under anesthesia and two weeks later the "big one". I feel I have a great surgeon. Young and conservative. May need more treatment later because a little cancer remains. She wanted to preserve nodes and urethra. I'm older and looked at quality of life issues.

It's painful and a challenge to heal. Tear, infection. Lack of emotional support. To whom does one talk about vulvar cancer?