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Trying to connect with Lichen sclerous and vulvar cancer women.
Gynecologic Cancers | Last Active: 4 days ago | Replies (64)Comment receiving replies
I was diagnosed with LS a few years ago. Recently after one spot of blood in April, I received my endometrial biopsy results on my UPMC app and I see I most likely have serous cancer. I am waiting for my doctor to call for next steps. I am glad to have support. My family is upset and I am trying to be strong.
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@dobraka @kellytzoumis @iama1survivor @andwho I have lichen sclerosis. Gyno put me on Estrace (estrogen) and Clobetasol and told me it’s a low dose of estrace so it won’t cause cancer. Well 9-10 months later I got cancer but it is not vulvar it’s Endometrial adenocarcinoma FIGO grade II. Endometriosis type. I went to a gyno oncologist (was gonna go to Mayo but found this guy who had a heck of a background) and he told me full hysterectomy and salpingo oophorectomy is the normal procedure BUT said there is an IUD procedure that has great success so my choice, and I chose the IUD. In and out procedure, had no pain just some recovery and spotting (very recently done). Anyway I didn’t know about vulvar cancer from lichen sclerosis and saw my dr. today and he’s aware and I’m on watch for that now. All thanks to all your posts. My review today from the surgery and biopsy and scrapping he did is a very good review. Best to everyone dealing with lichen sclerosis and any type of cancer and to Mayo posts which helps keep us informed!!!