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Is there a new blood test to determine cause of neuropathy?
Neuropathy | Last Active: Aug 1 3:33pm | Replies (24)Comment receiving replies
@SusanEllen66
Hello-
I was told I have CIDP and get terrible foot pain which makes it very difficult to walk. It can last days then it goes away until I do something that irritates it. My doctor thinks I should consider an infusion and I’m afraid to try it. I’m currently taking gabapentin that helped a little but doesn’t seem to be doing much now. I do not want to up my dose. What did the doctors suggest for your father? Anyone else in this group have CIDP?
Thank you for any info. I’m frightened by this since I have so many other medical issues going on at this time
Replies to "@SusanEllen66 Hello- I was told I have CIDP and get terrible foot pain which makes it..."
I was diagnosed with CIDP 3 years ago. I have had the IGIV infusion for 1-1/2 years and didn't see much improvement. Then I went on 12 weeks of corticoid steroids. Nothing. I am then went to Rituximab infusions every 6 months. I see improvement right after the infusion, but only for about 3 months. Currently I am waiting to get into a Clinical Trial. I take 200mg of Gabapentin every night to alleviate some of the pain. I don't like being foggy headed, but I have to have some relief.
I went to the Mayo Clinic in Rochester, MN and was confirmed as CIDP.
Good luck to you. I am always around to talk.
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@positivethinking I’m sorry to hear about your pain.
My dad did go for monthly infusions. He wouldn’t take the Gabapentin because you can’t drink alcohol.
He was an alcoholic. So, he was in pain much of the time.
12 years ago today, he got hit by a car while crossing the street and died. He was 85. I believe he was walking too slow, and the driver didn’t see him.