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@kjoed53

I never complain about any of my doctors. I appreciated every one of them even though they tend to give me bad news all the time. I'm very grateful for my rheumatologist's persistence for finding a way to get me off prednisone.

I haven't encountered any doctor that said they knew everything. Only one person on the internet claimed they were "entitled to know" everything about taking prednisone for PMR and tapering off prednisone. I was amazed the person couldn't taper off prednisone either and still had PMR since they knew everything.

There is always more that is unknown compared to what is known for any medical condition including PMR/GCA.

I have severe lumbar spinal stenosis and that causes me to have pain. A neurosurgeon says I need a multi-level lumbar fusion. I'm not sure what caused all the "degenerative changes" to my lumbar spine. I suspect spondylitis had something to do with it. Spondylitis can also cause structural degradation to the spine. If I had listened to the person who knew everything about PMR and prednisone, I would still be taking prednisone for PMR.

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@dadcue
Know-it-alls on any forum or on the internet in general are dangerous. Many people suffering through their days are susceptible to crackpot theories and influencers pushing misinformation and incentivized products. I am so grateful for the multitude of nonjudgmental support and information that is shared here. There are parallels and divergence in all our stories. PMR truly treats each of us as individuals.