← Return to Thyroid cancer, heart problems & finding right thyroid med dose

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@koh Hello! Thank you so much for your reply. It was incredibly helpful, and I really appreciate you taking the time to share your experience with me.
Reading your comment made me realize how many similarities there are between our experiences. I have also been dealing with symptoms such as pain in almost all of my joints. Last year, the pain became so severe that I ended up having MRI scans of my hips and my left shoulder because it was hurting so much. The MRI showed tendinitis and even a tendon tear, and to this day I have no idea how that happened.
I also experience swelling in my fingers from time to time, to the point where I sometimes couldn't even wear my rings comfortably. I mentioned these symptoms to several doctors, but none of them believed they could be related to my high dose of levothyroxine. After reading your comment, I started wondering if my symptoms could actually be connected as well.
Another thing I've struggled with is weight gain. Since my thyroidectomy, I have gained about 25 kg (55 lbs). My doctors were surprised because they kept telling me that, with such a high dose of thyroid hormone, I should actually be losing weight, not gaining it. It was very discouraging because I felt like no one could explain what was happening to me.
After reading your story, I honestly feel that I may be in a very similar situation. It gives me hope to know that I'm not the only one who has experienced this.
I have recently started reducing my levothyroxine dose little by little, and I truly hope that as my body adjusts, these symptoms will gradually improve and I can finally start feeling like myself again.
Thank you again for sharing your experience. It has given me hope and made me feel much less alone. Wishing you all the best on your journey. ❤️

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Replies to "@koh Hello! Thank you so much for your reply. It was incredibly helpful, and I really..."

@amaliaspyr One note about the joint pain, I was in PT for the hip/back and knee pain when I went back on medication and it improved drastically. The PT thought it was medication related and when it improved it showed that he was right. When my medication was reduced again the hip pain returned…its like a bursitis.
There is one other area that might be worth asking about and thats the T3. From what I have read and inquired about if T3 can’t manage the amount of T4 in the system it can result in side effects….the T3 processes the T4. If you increase T4 and the T3 can’t process it, it can cause side effects. The usual route for managing thyroid is for medication for T4, however if you are one of those people who do not have enough T3 to process the dose, it can cause side effects. (I don’t think I explained it well but it’s something like T4 is is the medication you need and T3 gets the medication into the cells.) The use of T3 has a lot of associated concerns so doctors prefer to use T4 medications. Good luck