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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: Aug 13 8:45am | Replies (163)Comment receiving replies
I wish I had known I have a case of Chronic Lymphatic Leukemia, I beleive it was the underlying cause of my 3 year battle with PMR. Since treatment for the CLL, my PMR symptoms and relief via Prednisone have subsided. Treatment for CLL included infusions whose makeup was determined from my blood tests. After two infusions my CLL markers improved to the point my follow up was scheduled 6 months later.
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@p00lman49
Sadly ... this happens way too often. Maybe not CLL but some other diagnosis is the problem instead of PMR.
If it isn't some other problem entirely then it is PMR symptoms that are triggered by something else or PMR symptoms on top of something else. It is way to easy to call everything PMR and throw prednisone at all of the problems. People including some doctors believe that symptoms that respond quickly to prednisone has to be PMR but that isn't always true.
https://bpac.org.nz/2023/pmr.aspx
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It doesn't help when people give their medical advice on the internet. They tell other people to take more prednisone for any pain. This is done sight unseen without a face to face evaluation or even doing any lab tests or other diagnostics.