@pschulte Thanks for your compassionate note! I trimmed my bangs yesterday and said a prayer for You. I want to tell you that I can actually wash my hair in a nice hot shower now…it took awhile, but there’s a morsel of Hope. Stay away from shampoo containing perfumes or preservatives. The Ambio disk on my eye reduced the scars on the back of my cornea. To help with the evening/nighttime stabbing/throbbing, when my head feels like a radiator, I keep a small spray bottle of aloe vera in the refrigerator. Other than the hospital administered drugs at the onset, I have taken Gabapentin. Presently, I’m having a less than wonderful time, trying to eliminate or at least reduce the amount. The pain management answer I was given was for pain blocker injections. One in my forehead at Mayo Clinic helped somewhat for a very short time, but the injection site was so painful. A couple more in slightly different areas had similar effects. I wish you success in finding helpful solutions and be proud of yourself for avoiding narcotics! You probably have a microwaveable mask for your eyes? My ophthalmologist told me that the absolute worst part of what I (we) have is that I (we) LOOK FINE!
With hugs, Margie