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Lymphedema in legs

Heart & Blood Health | Last Active: May 29, 2023 | Replies (129)

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@cindylb

Hello all, I developed lymphedema in my left arm following breast cancer surgery (mastectomy) despite just one lymph node being removed. For the first year following the surgery I had physical therapy and massage therapy and the thing that helped me most was the incredible massage therapist I found. She kept me in pretty good shape, most of the time. I had a hard time convincing the doctors I had lymphedema at all but finally my oncologist noticed a large swelling of my chest wall and arm during a visit and they recommended surgery to remove the extra tissue (and place for the fluid to 'hide'). I have only the very slightest lymphedema now. I still have to do daily exercises and watch my salt and movement to keep it in check but the surgery resolved (mostly) my issue. The only support I can offer to other lymphedema sufferers is to really investigate massage and diet to help alleviate symptoms. Also, it's a real and debilitating issue and shouldn't be brushed aside by doctors or anyone who hasn't had to suffer with it. Best of luck to everyone with this awful condition. I'm blessed to have mine under control right now.

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Replies to "Hello all, I developed lymphedema in my left arm following breast cancer surgery (mastectomy) despite just..."

Glad to hear that you are under control now. I agree about doctors not taking this too seriously or brushing it aside as regular edema and giving diuretics for it. All the diuretics did for me was mess up my urinary tract! My lymphedema nurse explained that the lymph fluid is different and heavier than the fluid that builds up from regular edema which is usually a circulation or heart related condition. Who knew? She also said that exercise is important. I do a lot of pumping my feet and deep stomach breaths, in the nose and out the mouth. Plus other exercises using the arms. I have rotator cuff damage and my range of motion is limited, but I do what I can do.