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Lymphedema in legs

Heart & Blood Health | Last Active: May 29, 2023 | Replies (129)

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@hopeful33250

@amkaloha

How are you doing with your lymphedema and treatment? We would enjoy hearing from you.

Teresa

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Replies to "@amkaloha How are you doing with your lymphedema and treatment? We would enjoy hearing from you...."

Thanks for asking! Right now I am two weeks into a new process of manual massage and leg wrapping. My lymphedema nurse comes on Mon and Thurs and massages both legs then wraps them in about 5-6 layers of compression wraps. She even wraps each toe. I take the wraps off the morning she comes and get my shower. I'd really like more showers but can't manage with the wraps on! She did measurements today and my legs and feet have come down between 5 and 1 cms since the first measurements, so we are finally going in the right direction! Before this I was using farrow wraps and it was like 2 steps forward, one step back, three steps forward, two steps back, etc. I never saw any progress. I also use the leg pumps for 1 hour a day. The only problem is that there is a limit to the amount of time they will give me for this due to Medicare regulations. So we will see how that goes and what I am to do after the time limit is up.

@amkaloha

Thank you for the update. I'm glad to hear that you are making some progress with your current treatment. Is it possible to have someone trained to continue this process when your benefits run out?

Teresa

Yes, I can get this lymphedema nurse to continue but I have to pay out of pocket.