@sueinmn
Hi, I'll be happy to share more.
Bronchoscopy in 8/2024 found pseudomonas, MAI (Mycobacterium avium-intracellulare), aspergillus, and staph. The MAI was in the BAL sample only, not in the RML sample. We've been watching since then, since I didn't feel sick (and I still don't.) Unfortunately, things have progressed-- more inflammation, tree-in-buds, etc. especially in the RML and LL. And now there's (probably) cavitation. We're watching 4 possible cavities-- they are very small right now-- the largest one is 1.4 cm. Since the bronchoscopy I've submitted 3 sputum samples and they all have shown pseudomonas and staph, but MAI and fungus are negative. The theory is that I just am not getting the samples from the infected areas, because everyone seems to agree that my CT scans show MAC progression. I found a specialist in my area 8/2025 and I recently did the work-up at NJH. (Waiting on 3 sputum culture results submitted while there.)

I'm no longer in my phase of denial, and it looks like MAC drugs in about 6 months, when I do my next CT scan. Boo.

Regarding AC, I nebulize 7% saline (17 minutes) and do my variation of autogenic drainage while laying almost flat in a recliner (30 minutes). I get out maybe about 1/8 of a cup of sputum each day. I'm in the process of ordering a vest. When that arrives the plan is to do 7% saline, Aerobika, and vest all at the same time, with intermittent huffing. I'm also supposed to do this routine twice a day.

Oh, I also have bronchiectasis.
If there's anything I left out, feel free to ask!