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What to do in life before the Big 3?
MAC & Bronchiectasis | Last Active: Jul 25 8:51am | Replies (24)Comment receiving replies
The Big 3 look to be in my near future for MAI. Quite often I'll see a post referring to "side effects" of the Big 3, and it seems like everyone just knows what they're talking about. Could y'all please elaborate? Sometimes I think I don't want to know, but at some point (sooner rather than later) I guess I'm going to have to face reality.
Replies to "The Big 3 look to be in my near future for MAI. Quite often I'll see..."
Sorry I can't help... All I can do is ask, what are the Big 3?
(Excuse my still relatively uninformed newby questions)
Anyway, good luck to you!
@letsjustbreathe Side effects are different for everyone. I have been on the Big 3 daily for 2 years now along with Arikayce for the past 23 months. I have been fortunate and not experienced bad side effects other than fatigue but I'm not sure if that's from the drugs or the disease. I do take and would recommend a daily probiotic taken at least 4 hours outside of any antibiotic. Also, plain yogurt dressed up with fresh fruit and honey. Best of luck!
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@letsjustbreathe I am going to address both of today's questions here, because they are related.
First, can you share a little about you diagnosis - when and how was your infection diagnosed? Do you have MAC (mycobacteria avium complex), pseudomonas, or something else? What symptoms do you currently have? And what is your current practice for airway clearance to help keep the mucus out of your lungs?
Lots of questions, I know, but many people never need to start antibiotics at all. Some people clear MAC spontaneously, and for others it remains at a low enough level to tolerate.
Are you seeing a pulmonologist experienced in treating MAC?