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Which Seizure Trigger Is Your Hardest Battle?
Epilepsy & Seizures | Last Active: 7 hours ago | Replies (78)Comment receiving replies
Hi @kb2014a
Thank you for sharing something so difficult. What you're describing sounds incredibly painful — having to set a boundary to protect your health, and being met with blame instead of understanding, from the very people closest to you.
It's a hard trade-off: you've been seizure-free for over 12 years, and it sounds like this boundary may be part of what's kept you well. But that same protection has come at the cost of relationships changing or ending. That's a heavy thing to carry, even when you know you're doing what's right for your health.
Has setting this boundary gotten any easier over time, or does the pushback from your family still weigh on you the same way it did at the start?
Chris
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@santosha yes this is a tough one. I have had trauma recovery domestic violence treatment. Yes it still bothers me. People in my life have controlling behaviors. Not ok. I had cranitomy to remive abcess left temporal lobe from bacterial meningitis of my brain. It was a catastrophic illness. I went into cardiopulmonary arrest. I look at it this way. It was an opportunity for my family to learn about what happened to me. No that did not happen. Controlling behaviors continued. Unnecessary emotional distress is a seizure precipitant. You can tell someone till you are blue in the face your behavior is not ok..does not always work. Actually can reinforce the negative behavior.