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New colostomy: I'm a little lost and have questions
Ostomy & J-Pouch | Last Active: Aug 6 8:49am | Replies (51)Comment receiving replies
Thank you so much, that info was incredibly helpful! I've honestly just been looking through things that might help my bag smell pleasant. Maybe to others, but def for me, I use the M9 drops (they have me a take home kit in the hospital) I don't know how much they helped. I'm still really clumsy with changing, I think I've decided the disposable ones are more appropriate because I have a colostomy and the drainable ones are really hard for me to be okay with because I don't feel clean after and they don't feel like they handle a more formed load. I've gotten some of the extender tape, some viva paper towels to help clean and dry, scented trash liners, a separate metal trash can with a lid for the bathroom (Partially to not have that all out in the bathroom and partially because we have animals that get into things), and some disposable bags to put the ostomy bags in. I want to put together a supply travel or emergency kit. I'm just kind of planning ahead now because I think it helps me feel in more control. I also want to reach out to different companies to try different systems to see what I like best.
Replies to "Thank you so much, that info was incredibly helpful! I've honestly just been looking through things..."
@dgroves0430 I use a Coloplast closed end disposable bags and I love it. I have bad arthritis in my hands and I never felt clean with drainable bag I also think my skin stays in better condition changing and caring for stoma everyday I use cottenelle wet wipes and then wash with warm water I try to keep my dauly routine as simple as possible
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@dgroves0430 I'm not sure if they still do it but the ostomy appliance companies used to send you an nice little travel kit when you got samples and told them you had a new ostomy. But you can get any kind of pouch, to be honest.
It's very common to think your ostomy smells. I have my spouse do a "sniff check" and he can never smell me, so that is reassuring.
Bathroom spray deodorizer is a good option, and there are small sizes you can get for travel.
https://www.ostomy101.com/ is a vendor neutral resource that has been mentioned. I haven't explored it a lot but it looks like it has good information.
Convatec has a post ostomy surgery exercise program that I think has really good value.
You have to sign up, but there is a 3 stage post surgical fitness program that was developed by a physical therapist who wound up with a ostomy .
https://www.convatec.com/ostomy-care/meplus-patient-support/