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Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

@johnbishop Demyelinating neuropathy is different than your “everyday” version I believe.

My father had CIDP, Chronic Idiopathic Demyelinating P….. (I forget the word). Anyway, he was in terrible pain because the myelin sheath was wearing away off his nerves.

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Replies to "@johnbishop Demyelinating neuropathy is different than your “everyday” version I believe. My father had CIDP, Chronic..."

@SusanEllen66 I was just at neurology in the past week. They said my neuropathy, currently, is not demyelinating. But they said that they do check for that as it can evolve into that.

@SusanEllen66
Hello-
I was told I have CIDP and get terrible foot pain which makes it very difficult to walk. It can last days then it goes away until I do something that irritates it. My doctor thinks I should consider an infusion and I’m afraid to try it. I’m currently taking gabapentin that helped a little but doesn’t seem to be doing much now. I do not want to up my dose. What did the doctors suggest for your father? Anyone else in this group have CIDP?
Thank you for any info. I’m frightened by this since I have so many other medical issues going on at this time