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Meet others living with Head & Neck Cancer: Introduce yourself
Head & Neck Cancer | Last Active: 3 days ago | Replies (721)Comment receiving replies
Hi @simplygrand
I was 39yrs. old in 2008 when I was officially diagnosed with cancer Stage IVB T2N3M0 on left tonsil caused by HPV and one of my 3 infected lymph nodes was over 7cm and that is not a typo. I had 35 rounds (7 weeks) of Photon radiation which amounted to 70 Gy and 3 rounds (211mg each) for a total of 633 mgs of the platinum-based chemo Cisplatin and had no surgery whatsoever.
One thing I am finding out is this big de-escalation Head & Neck cancer treatments coming about especially for people who got it as a result of HPV. I attached 4 articles (pdfs) on it here. Also, I talked to my oncologist recently and he said I would have four different options if I had tonsil cancer today.
Hope this helps.
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@roblem thank you very much for this information. I read all the articles with interest. It turns out one of the authors is actually on staff at one of the locations that I’m about to have treatment at. I can talk to his colleagues about the article and try to get a sense for if any of it is applicable to me. My concern is primarily hearing, but all the other side effects are certainly daunting. I really appreciate you spending the time to send a note to me and I’ll update the group as I move forward in my quest to be well. Again, I really appreciate this.