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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: Aug 13 8:45am | Replies (163)Comment receiving replies
@pmrsuzie My PMR showed up in April 2019 and I went until March 2020 before I received the PMR Dx. I have started prednisone and tapered successfully multiple times and each time the pain returns after the taper ends - within 30 days. This tells me my body has not gone into remission.
In Sept 2025 I went to a leading out of state teaching hospital that Dx asymptomatic GCA. I do have some aorta damage and am now being watched by appropriate specialist. My treatment plan has changed as well.
If you cannot taper successfully it may be because you have more than PMR at play. Please push to be reevaluated since PMR is known to burn out in a few years.
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@jabrown0407
I see a cardiologist yearly, used to be every 6 months. In April 2025 I had an echocardiogram which only showed some minor problems. No aorta damage was mentioned.
I will research asymptomatic GCA. My rheumatologist seems to be on the lookout for GCA. He knows I am concerned about it. Thanks for your concern, I see rheum in August.