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What was your experience on Kevzara?

Polymyalgia Rheumatica (PMR) | Last Active: 7 hours ago | Replies (181)

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@kjoed53

I understand what you are saying and I agree with you about informing our doctors. However, the information she provides is very credible in my opinion.

The product is what it is and and we can take it or leave it. It isn't like we have to buy her product to get the information. In my opinion, vitamin depletion for people on prednisone is well documented. If prednisone doesn't deplete nutrients then all the other medications we take to treat prednisone side effects will.
https://lumistry.com/blog/drug-induced-nutrient-depletion/
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I think a bigger problem with internet information comes from people who say doctors don't know how to treat PMR/GCA. They dole out medical advice without any medical license as if they are managing our conditions instead of our personal doctor. There tends to be an information void that gets filled when doctors don't provide information or when a patient doesn't like the information a doctor provides. My doctors were upfront with me and admitted there were many things about PMR/GCA and treating our conditions that nobody knows.

I'm more suspicious of people who are giving "medical advice" on the internet and don't stick to simply sharing their personal experiences. Their narrative gets repeated and pretty soon patients are treating themselves. Fortunately, I had access to doctors who I liked and trusted so I didn't need someone on the internet to manage my medical care. I had a period of time when I treated myself and I regret doing that.

Dr Megan has a doctorate degree in pharmacy so that counts for something. She took prednisone herself and has her own personal experience. She seems genuinely interested in PMR and GCA. She also says we should discuss everything with our personal doctor so she agrees with you on that point. I agree with you too.

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Replies to "@kjoed53 I understand what you are saying and I agree with you about informing our doctors...."

@dadcue
In my opinion, she is most interested in selling her products and that gives me pause for concern. She might be very knowledgeable of the depletion of vitamins and minerals when taking prednisone, have a doctorate in pharmacology and have firsthand experience in the effects of prednisone on herself, but there is a wide chasm between being a knowledgeable pharmacist and a knowledgeable physician. We are all adults here. We are all responsible for our own well being. As such, we are all capable of making our own decisions based on our own individual needs. All information is useful when taken in this context.