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What was your experience on Kevzara?
Polymyalgia Rheumatica (PMR) | Last Active: 16 hours ago | Replies (179)Comment receiving replies
Our doctors need to know about all the supplements that we are taking so that they can interpret our blood work accordingly and help us avoid drug interactions, adverse reactions and the poisoning that can occur at high dosage of some supplements (including vitamins). Distinguishing between misinformation, incentivized information, misguided information and accurate information on the internet is becoming more difficult. If someone is providing information while selling their own products or as an incentivized spokesperson for someone else's products then they are not an impartial source. This is not to say that we cannot obtain sound and logical information from our fellow sufferers, but my advice to avoid worsening the situation that brings us here in the first place is not to add supplements without prior consultation with your health care providers.
Replies to "Our doctors need to know about all the supplements that we are taking so that they..."
@kjoed53
Agree. Very important.
I make certain that all of my doctors know all of my meds., supplements and diet. Also, exercise regimen and sleep schedule. Everything.
It’s a team effort with a purpose and everything to lose. js
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@kjoed53
I understand what you are saying and I agree with you about informing our doctors. However, the information she provides is very credible in my opinion.
The product is what it is and and we can take it or leave it. It isn't like we have to buy her product to get the information. In my opinion, vitamin depletion for people on prednisone is well documented. If prednisone doesn't deplete nutrients then all the other medications we take to treat prednisone side effects will.
https://lumistry.com/blog/drug-induced-nutrient-depletion/
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I think a bigger problem with internet information comes from people who say doctors don't know how to treat PMR/GCA. They dole out medical advice without any medical license as if they are managing our conditions instead of our personal doctor. There tends to be an information void that gets filled when doctors don't provide information or when a patient doesn't like the information a doctor provides. My doctors were upfront with me and admitted there were many things about PMR/GCA and treating our conditions that nobody knows.
I'm more suspicious of people who are giving "medical advice" on the internet and don't stick to simply sharing their personal experiences. Their narrative gets repeated and pretty soon patients are treating themselves. Fortunately, I had access to doctors who I liked and trusted so I didn't need someone on the internet to manage my medical care. I had a period of time when I treated myself and I regret doing that.
Dr Megan has a doctorate degree in pharmacy so that counts for something. She took prednisone herself and has her own personal experience. She seems genuinely interested in PMR and GCA. She also says we should discuss everything with our personal doctor so she agrees with you on that point. I agree with you too.