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sarahlynn1960 avatar

Pari e-flow rapid and Tobramycin

MAC & Bronchiectasis | Last Active: Jul 18 1:41pm | Replies (9)

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Profile picture for carlynic @carlynic

@joyeous Toby is available through various Specialty Pharmacies. My prescribing Pulmonologist ordered mine through his practicing hospital Specialty Pharmacy. But we spend several months each year in a different state and the hospital
Pharmacy wouldn’t ship out of state so I was able to find it at CVS Specialty Pharmacy. If you haven’t already done so, I’d recommend checking with your doctor and your Rx insurance carrier about Specialty Pharmacies.

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Replies to "@joyeous Toby is available through various Specialty Pharmacies. My prescribing Pulmonologist ordered mine through his practicing..."

Thank you for the response.
I have received my Tobi now. It really helps! Thankful for something where
we can actually feel relief almost immediately is WONDERFUL.
Taking Brinsupri and also Repatha, but those are not something where we can
expect to feel such quick results. I'm grateful for all the time put in by
people researching and trying to find ways to make life better.

Now if Mayo would unlock my acct... Could not remember password and made
too many attempts. That would be wonderful too.