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What helps you manage anger when living epilepsy?
Epilepsy & Seizures | Last Active: 19 hours ago | Replies (53)Comment receiving replies
Sometimes, take a step back. Instead of feeling angry over epilepsy/seizure, I think it feels better to see it as a challenge. To push the boundary for ourselves. Unfortunately, my epilepsy is a refractory one and I have almost daily seizure I can hardly take a day off if you know what I mean.
Last March, I just took a 4 hr flight after not having stepped into an aircraft cabin for almost a decade. How many decades do I have not to do things I love and I can control doing? I had disappoints towards medication, people and pretending to be ok when I was not because no one without epilepsy can possibly understand my emotion. Popping those medication like candy everyday? Giving up drinking which I love? Soon I’ll have to switch to generic after my insurance coverage stops coverage. Who knows whether they’ll work?
That 4 hour flight just felt so good.
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@louissc
From my experience, don't ask and don't be demanding, tell your neurologist you NEED their assistance. He/she may write a letter to the insurance company educating them about SUDEP. The thought of them being held financially liable for one losing their life due to denying their Brand Name med, may make a difference. With each 3 month supply request, the insurance company said I had to take generics. My neuro jumped in, wrote a letter and the insurance company complied. I wish you success. You'll never know unless you try.